Taoiseach and Tánaiste “must personally intervene” to ensure that Ava be granted the medication she so urgently requires

Vera Twomey pictured with Deputies Collins and McGrath

INDEPENDENT West Cork TD Michael Collins has called on the Taoiseach and the Tánaiste to personally intervene with Minister for Health Simon Harris TD, in order to ensure that West Cork woman Vera Twomey can get the medication, which is urgently need to ease her daughter’s suffering.

‘Vera Twomey has walked from her home near Macroom and has spent nights sleeping outside the Dáil in her fight to get medication for her child and every other person who suffers from the same illness in this country,’ Deputy Collins said. In an answer to a question some weeks ago the Taoiseach said that for the medication to be legalised in this country it would have to be done through legislation which, in his view, would take some time. He also said a meeting of the Joint Committee on Health and Children could result in a licence being given on compassionate grounds. This meeting took place but, unfortunately, further hurdles have now appeared and Vera is unable to access the medication.’

Vera’s daughter, Ava, suffers from a rare form of epilepsy, Dravet syndrome, which means she experiences multiple seizures on a daily basis.

‘This lady just wants to be able to provide her child with relief from her suffering and pain and we have to have some compassion. She had a meeting with the Minister, Deputy Harris, who promised a follow-up meeting which has not taken place. The Taoiseach and the Tánaiste must intervene with the Minister and ask him to help Vera and her daughter,’ Deputy Collins said.